Our Pain Database and Clinical Research
Clinical services can make great research contributions if they can collect high quality data in an ethically approved framework.
We have been granted NHS ethical approval (HRA) to collect and maintain a Research Database / Registry, the PAIRED database (Bath and Bristol) . This curates and stores clinical data from everyone who attends our services and who gives written, informed consent.
When patients attend our services, they complete many questionnaires and physical measures as a standard part of treatment. However, this information is hugely valuable for research, and we seek written, informed consent to use this for research purposes.
We aim to publish clinically relevant studies on children and adults with chronic pain - check some of our publications in the adjacent page!
We are very grateful to the people who gave consent for their data to be used. If you come to our unit you will be given the opportunity to contribute, if you choose to. This would be discussed in detail whilst you are with us, but here are some samples of the information sheets about the research database:
About your data and our research
As an NHS organisation we use personally-identifiable information to conduct research to improve health, care and services. As a publicly-funded organisation, we have to ensure that it is in the public interest when we use personally-identifiable information from people who have agreed to take part in research. This means that when you agree to take part in a research study, we will use your data in the ways needed to conduct and analyse the research study. Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. To safeguard your rights, we will use the minimum personally-identifiable information possible.
Health and care research should serve the public interest, which means that we have to demonstrate that our research serves the interests of society as a whole. We do this by following the UK Policy Framework for Health and Social Care Research.
If you wish to raise a complaint on how we have handled your personal data, please let us know via email at ruh-tr.RNHRDPMUenquiries@nhs.net. If you are not satisfied with our response or believe we are processing your personal data in a way that is not lawful you can complain to the Information Commissioner’s Office (ICO).
